As you likely know by now, our youngest daughter has Spina Bifida. We do a substantial amount of weekly therapy and in January we had the opportunity to attend our first intensive therapy session at Napa Denver. Intensive therapy is different than weekly therapy because you attend every day for several hours each day for …
After publishing my post on Spina Bifida awareness month, I couldn't shake the feeling that something about it just wasn't quite right. As I read through the topics on my blog post again, I realized that the section on living with Spina Bifida was straight up awful. Yes, it shared honest facts about the different …
Happy October and happy Spina Bifida awareness month! I know there are so many awareness months and weeks out there, it can get overwhelming. I also know that knowledge is power and the more you know, the easier you can understand someone when you learn their story. I am always so deeply touched when someone …
Continue reading Spina Bifida Awareness Month + Bryn Updates
Bryn turned one on January 22nd and I'll be honest, I've been struggling to work through my feelings ever since. A first birthday is such a monumental occasion. It signifies the end of the true baby phase and the beginning of the toddler phase. It comes with new milestones, new foods, and new things to …
Continue reading A Special Needs Mama’s First Birthday Feelings
Spina bifida awareness month is October. I did a weekly series on Instagram and wanted it to have a spot on the blog as well. I hope you find this informative and helpful. Please know I am always here for support and questions. 🤗 Week 1 Hi friends! October is spina bifida awareness month and …
Our sweet Bryn is seven weeks old now! So much has happened in the seven weeks since her delivery, yet it feels like she was born just yesterday at the same time. I wanted to share her birth story and our NICU experience before it all fades into the newborn blur of sleep deprivation! The …
Continue reading Bryn’s Birth Story – Our Spina Bifida Journey Continues
It's been two weeks since I was admitted to the hospital for low/leaking fluid. I wanted to post a short update for anyone interested and for our baby girl to look back on one day! While it has not been an easy two weeks for Mom or for the two older kids and their Dad …
As you know, about halfway through 2020 we were dealt an amazing blessing and surprise when we became pregnant with our third baby! Shortly after in September and October, we came to learn that our precious grand finale for our family would be diagnosed with Spina Bifida. We underwent intense testing and consultations and decided …
It's been barely a month since we found out that something could potentially be different with our third sweet babe. In such a short amount of time, so much has happened already. I've decided to periodically share our journey here so that we can always remember all we have been through and so that our …
