After publishing my post on Spina Bifida awareness month, I couldn't shake the feeling that something about it just wasn't quite right. As I read through the topics on my blog post again, I realized that the section on living with Spina Bifida was straight up awful. Yes, it shared honest facts about the different …
Tag: spina bifida awareness
Spina Bifida Awareness Month + Bryn Updates
Happy October and happy Spina Bifida awareness month! I know there are so many awareness months and weeks out there, it can get overwhelming. I also know that knowledge is power and the more you know, the easier you can understand someone when you learn their story. I am always so deeply touched when someone …
Continue reading Spina Bifida Awareness Month + Bryn Updates
Spina Bifida Awareness
Spina bifida awareness month is October. I did a weekly series on Instagram and wanted it to have a spot on the blog as well. I hope you find this informative and helpful. Please know I am always here for support and questions. 🤗 Week 1 Hi friends! October is spina bifida awareness month and …
Bryn’s Birth Story – Our Spina Bifida Journey Continues
Our sweet Bryn is seven weeks old now! So much has happened in the seven weeks since her delivery, yet it feels like she was born just yesterday at the same time. I wanted to share her birth story and our NICU experience before it all fades into the newborn blur of sleep deprivation! The …
Continue reading Bryn’s Birth Story – Our Spina Bifida Journey Continues
Ringing in 2021 from a Hospital Bed
As you know, about halfway through 2020 we were dealt an amazing blessing and surprise when we became pregnant with our third baby! Shortly after in September and October, we came to learn that our precious grand finale for our family would be diagnosed with Spina Bifida. We underwent intense testing and consultations and decided …
Our Spina Bifida Journey
It's been barely a month since we found out that something could potentially be different with our third sweet babe. In such a short amount of time, so much has happened already. I've decided to periodically share our journey here so that we can always remember all we have been through and so that our …